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21 February 2008
MICHAEL LAWS
LUCY'S DADDY
LUCY: Wednesday Evening
"Wednesday evening. I had to
remember what day it was in starting this update: to be
honest, I'm assuming it's Wednesday but nothing close
confirms that. If I'm wrong, I apologise.
A glimmer today ... a glimmer of hope. Lucy had her CT
scan and the preliminary results suggest that the anti-fungal
medication is working. So far. As the specialists reminded
us, she is not out of the woods yet in any way, and clinical
expectancies are still stacked against our golden girl.
But for the first time, Leo and I were able/invited to
view the CT scan of Lucy's lungs and see the damage. No
wonder they did not show us the same results last week
- the contrasts were significant.
The pneumonia remains on one lung but is dissipated. The
aspergillus is still there and dotted over both but not
as prominently as last week. In other words, progress and
I think Mark, our primary specialist, was as buoyed as
us. Those prayers - and the medication - are having their
effect.
Leo and I felt that we had dodged a bullet but it is Lucy
that has actually fought the battle. She is a brave, spunky
little girl and if her body did weird things to get her
here, then her body can do weird things to get out.
But tomorrow is the real test day: a lumbar punch and the
bone marrow biopsy. That will tell us if the leukemia is
tracking in the same direction or not, and if the aspergillus
has or has not spread elsewhere.
She's sitting up in bed, currently, eating spaghetti and
watching a DVD after an active day which, I swear, included
a brief jog when she was off her drip. Maybe that was to
celebrate the three failed attempts this morning to find
an alternative drip entry before her CT scan.
Leo and I are very tired now. We're in a war - like all
the parents on this ward. Tomorrow will be another battle,
another skirmish, another fight and so will the day after
that, and the day after that, and the day after that. Our
little girl is the principal combatant, we are the support
staff. I don't know how she does it but she does.
Lucy: light bearer. You go, girl."
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